Marfan syndrome is one of the many genetic syndromes they are testing for, but definately at the top of the list due to the heart defect he has which goes along with Marfan syndrome. I have googled and researched a ton, but it is difficult with this type of heart defect and if indeed it is Marfan, most people don't catch it until later on in life, so everything I am finding is nothing related to infants.

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