Feeding tubes are really simple... sometimes the gravity ones are a bit harder because of the cleaning/sterilization requirements. Once you get the hang of it, there is nothing to it.
Glucometers are SUPER easy now and you just jot down a couple numbers throughout the day. Injections are easier, too, since many use insulin pumps and parents are accustomed to centers requiring them to come in to give them as well (if you are uncomfortable with it). A digital food scale for proper serving size help tremendously
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HIV is getting easier, too. The meds work well and phobias are getting less and less prominent in the general public. As long as you use universal precautions, as we are supposed to for ALL kids, there is minimal to NO risk. Many centers have these kids and don't even know it. A strictly enforced illness policy is really all these kids need to stay healthy and active.
Spina Bifida in infants is a bit tricky, but cleanliness, gloves and simple first aid training will prepare you. The parents are a great resource for wound care training as well.
Autism/FAS/Downs, etc have govt programs that have access to help from the state. They come to your home and do therapy a few times a week, they will also train you on how best to help the child.
Oxygen therapy is super easy now with the new uber light weight bottles.
If you want to care for special kids, there is always a way.. The real problem comes in when we are forced to go beyond our comfort level. There is NO EXTRA PAY for this. It is simply a "for the love" kind of a deal.
For others, who have a medical degree, keeping these kids has a different level of liability. We are not covered under the Good Samaritan act, therefore risk losing our professional license, homes or even jail time if we make a mistake.
Sometimes I am told the risk is too great.
It is not always a black and white issue... Luckily, IME, these families are the most understanding there are when given the absolute truth.
