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Daycare Center and Family Home Forum>Heartbroken and Not Sure What To Do
JJPlaycare 06:21 AM 01-30-2012
I need some advice/guidance/someone to calm me/tell me Im nuts/ I don't know - a list of a few things going through my head! This is the story in brief. So I have been caring for a family for the past 3 years. They were due to have a baby in December and then have 6 weeks maternity leave! So the baby would join its brother in daycare in January. Well the baby was born with very long fingers and toes, they thought he had extra cartilage and they were referred to a specialst in which took a couple weeks to get into to. Took him to the doctor who concluded that was not what was going on and reffered them to a different specialist. They saw this specialist the day before she had to return back to work. On his first day of daycare at drop off she informed me that they got bad news at his doctor appointment. He has a heart defect and a possible underlying syndrome. His aorta is stretched to two times the size that it should be and they are treating him with meds. He is the youngest child they have treated and the medication has only been out for 5 years. His condition is called aortic root enlargement. They have to take him back in in a few weeks to see if the dosage/medication is working. Also the underlying syndrome wont be figured out for 4-6 more weeks after they get the results back for the genetic testing. : ( I am completely heart broken for this family. I have been a complete basket case over all of this. I am having mixed emotions and have been on a complete rollercoaster, I can't even imagine what the mother, father and family is going through. I don't know what to do. I feel heartbroken and want to help, but at the same time I feel like this was completely dumped on me and I REALLY have my hands full as I am starting another infant mid Feb, have a 1 year old of my own with a total of 11 children I care for. I am completely nervous to care for him, I feel horrible for saying this, but its the truth! : ( I feel like right now it is a waiting game to see how everything unfolds, as far as whether his meds are doing the job, what the syndrome is going to entale.... AND currently they have been in the hospital for the past week and a half with RSV! : ( I really need some support and some help. I am just a mess over this and don't know if I am comming or going, please help.
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Tags:aortic root enlargement, illness, liability, marfan syndrome, maternity leave, overwhelmed, special needs
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